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HIV Cohorts and Databases
A Source for Information
Cohorts and databases are a significant source of data for clinical research and have become a valuable tool in the HIV setting. Many of the Forum’s recent projects have highlighted the importance of cohorts and databases, including their role in monitoring long terms toxicities; assessing the risk of cardiovascular disease; investigating the clinical significance of HIV drug resistance; analyzing sex and gender, or race and ethnicity effects to name but a few. Through these projects it has become clear that a great many cohorts and databases exist, that these are quite diverse and that it would be helpful to investigators and agencies alike to have ready access to an information source listing a brief description of each cohort.
The Forum has taken on the task of developing this information source. In this first phase, we have started out simply by listing brief cohort descriptions as they were provided to an International Workshop on HIV Observational Databases, including only those who expressed permission to have this material published.
Together with the International Workshop on HIV Observational Databases Steering Committee, we have developing a questionnaire to facilitate the collection of cohort descriptions in a standardized format. This will improve searches for and access to specific information regarding HIV cohorts and databases. This standardized cohort description format is now available.
If you would like to have your cohort included in this project, please complete
the standardized format and send it to Linda Onaga (lonaga@gwu.edu).
11th International Workshop on HIV Observational Databases
Cohorts:
1917 Clinic Cohort – University of Alabama at Birmingham
Changes in Opportunistic Prophylaxis Study Group (CIOP)
Chelsea and Westminster HIV Cohort
Cohorte L’Actuel, Montreal, Canada
Concerted Action on Seroconversion to AIDS & Death in Europe (CASCADE)
Coordinamento Italiano Studio Allergie e Infezione da HIV (CISAI)
Data Collection on Adverse Events of Anti-HIV Drug Cohort (D:A:D)
Frankfurt HIV Cohort, JW Goethe-Universität, Frankfurt, Germany
Grupo Español Multicéntrico para el Estudio de Seroconvertores (GEMES)
HIV Cohorts Data Exchange Protocol
Multicenter AIDS Cohort Study (MACS)
Italian Cohort of People Naive From Antiretroviral (ICONA)
PISCIS, Catalonia and Balearic islands, Spain
The Research in Access to Care for the Homeless Cohort (REACH)
Tri-Service AIDS Clinical Consortium (TACC)
UK Register of HIV Seroconverters, UK
Women’s Interagency HIV Study (WIHS)
Forum for Collaborative HIV Research
Department of Prevention and Community Health
School of Public Health and Health Services2175 K St NW Ste 700
Washington, DC 20037
Phone: 202 530-2370
Fax: 202 530-3923
info@hivforum.org