HIV Cohorts and Databases 2011

E-mail Print

A Source for Information

Cohorts and databases are a significant source of data for clinical research and have become a valuable tool in the HIV setting. Many of the Forum’s recent projects have highlighted the importance of cohorts and databases, including their role in monitoring long terms toxicities; assessing the risk of cardiovascular disease; investigating the clinical significance of HIV drug resistance; analyzing sex and gender, or race and ethnicity effects to name but a few. Through these projects it has become clear that a great many cohorts and databases exist, that these are quite diverse and that it would be helpful to investigators and agencies alike to have ready access to an information source listing a brief description of each cohort.

The Forum has taken on the task of developing this information source. In this first phase, we have started out simply by listing brief cohort descriptions as they were provided to an International Workshop on HIV Observational Databases, including only those who expressed permission to have this material published.

Together with the International Workshop on HIV Observational Databases Steering Committee, we have developing a questionnaire to facilitate the collection of cohort descriptions in a standardized format. This will improve searches for and access to specific information regarding HIV cohorts and databases. This standardized cohort description format is now available.

If you would like to have your cohort included in this project, please complete the standardized format and email it to This e-mail address is being protected from spambots. You need JavaScript enabled to view it

17th International Workshop on HIV Observational Databases


1917 Clinical Cohort -- University of Alabama at Birmingham

Athens Multicenter AIDS Cohort Study (AMACS) -- Hellenic Center for Infectious Diseases Control (HCIDC)

Academic Model for the Prevention and Treatment of HIV/AIDS (AMPATH) -- Moi University School of Medicine, Indiana University School of Medicine

ANRS CO3 Aquitaine Cohort -- Groupe d'Epidémiologie Clinique du SIDA en Aquitaine

ANRS CO19 Coverte - Cohort of young adults infected with HIV since birth or childhood


The AGEhIV Cohort Study: Comorbidity, Ageing and HIV

Anti-Retroviral Research fOr Watoto (ARROW) -- HIV-Infected Children in Uganda and Zimbabwe

The Antiretroviral Therapy Cohort Collaboration (ART-CC) -- University of Bristol

The Australian HIV Observational Database (AHOD) -- The Kirby Institute, University of South Wales

Brussels St Pierre Cohort

Canadian HIV/HCV Co-Infection Cohort Study (CTN 222)

Canadian Observational Cohort Collaboration (CANOC)

Changes in Opportunistic Prophylaxis Study Group (CIOP)

Chelsea and Westminister HIV Cohort

Children Cohort of the German Competence Network for HIV/AIDS -- in collaboration with Paedeatric Working Group AIDS in Germany (PAAD)

Chilean AIDS Cohort

Collaborative HIV Pediatric Study (CHIPS)

Center for Disease Research in Zambia (CIDRZ)/Zambian Ministry of Health Cohort

Cohorte L’Actuel, Montreal, Canada

Cologne Bonn Cohort, Germany

Concerted Action on Seroconversion to AIDS & Death in Europe (CASCADE)

Contrame ANRS 1203 Cohort

Copana Cohort Profile

Coordinamento Italiano Studio Allergie e Infezione da HIV (CISAI)

Curaçao Cohort Study

DART Trial Cohort

Data Collection on Adverse Events of Anti-HIV Drug Cohort (D:A:D)

The EuroSIDA Study

Frankfurt HIV Cohort, JW Goethe-Universitat, Frankfurt, Germany

French MANIF Cohort Study

The German AIDS Related Lymphoma Cohort Study

Greek HIV/AIDS Registry and HIV-1 Sequence Database

Grupo Espanol Multicentrico para el Estudio de Seroconvertores

HIV-CAUSAL Collaboration -- Harvard School of Public Health

HIV Cohorts Data Exchange Protocol

Hlabisa HIV Treatment and Care Programme -- South African Department of Health & Africa Centre for Health and Population Studies

HAART Observational Medical Evaluation and Research (HOMER) Cohort

Management of Standardized Evaluation of Retroviral (MASTER) HIV Infection Cohort

Monitoring Antiretroviral Resistance in Children (MARCH) -- Joint Clinical Research Center (JCRC)

Multicenter AIDS Cohort Study (MACS)

The IeDEA South African and ART-CC Collaborative Analyses

The IeDEA South African Collaboration - Adult Collaboration

The IeDEA South African Collaboration - Paedeatric Collaboration

The IeDEA West Africa Collaboration (WADA and pWADA)

Italian Cohort of People Naive from Antiretroviral (ICONA)

Metabolic Clinic (MC) of the University of Modena and Reggio Emilia Cohort Profile

Netherlands Tuberculosis Register (NTR) 

North American AIDS Cohort Collaboration on Research and Design (ACCORD)

Ontario HIV Treatment Network Cohort Study (OCS)

Pediatric HIV/AIDS Cohort Study (PHACS)

PharmAccess African Studies to Evaluate Resistance (PASER)

PISCIS-Catalonia and Balearic Islands, Spain

The Research in Access to Care for the Homeless Cohort (REACH)

Royal Free Hospital Database

Rural Zambezia Cohort -- Friends in Global Health (Vanderbilt University) & Mozambican Ministry of Health

San Paolo Infectious Diseases (SPID) Cohort -- Clinic of Infectious Diseases in San Paolo Hospital, Milan, Italy

SolidarMed Antiretroviral Treatment (SMART) Program

Southern Alberta Clinic Cohort

Spanish Cohort of HIV-Infected Children (CoRISpe)

Swiss HIV Cohort Study

The TASO-CAN Cohort Collaboration -- The AIDS Support Organization in Uganda, University of Ottawa & University of British Columbia

The Australian HIV Observational Database (AHOD)

The Clinique Medicale l' Actuel Database

The Collaborative HIV Paediatric Study Cohort (CHIPS)

The Collaborations in HIV Outcomes Research/US (CHORUS) Cohort

The French Hospital Database on HIV

The UK and Ireland National Study of HIV in Pregnancy and Childhood (NSHPC)

The UK Collaborative HIV Cohort Study (CHIC)

U.S. Military (DoD) HIV Natural History Study Cohort

UK Register of HIV Seroconverters, UK

The Veterans Aging Cohort Study

Women’s Interagency HIV Study (WIHS)