Racial and Ethnic Minority Issues in the Management of HIV Care, Prevention and Research

Presentations:

Meeting Report

Downloads:

Background:

Racial and ethnic minorities in the U.S. face disparities in terms of access to care as well as recruitment and retention into clinical trials. Prevention is another key area that is sensitive to racial and ethnic minority issues. On the biological side, genetic factors associated with HIV transmission and natural progression have been identified. Tolerability of and response to antiretroviral treatment may be affected by genetic factors related to drug disposition and drug toxicity. As is true for gender issues, the level of recruitment of racial and ethnic minorities is not sufficient for adequate analysis of the impact of race and ethnicity. This gap is also not being addressed by cohort studies.

Objectives:

The Forum will convene a workshop in collaboration with the Office of AIDS Research, National Institutes of Health and the Centers for Disease Control and Prevention, to focus on actions required to close the gaps in research of racial and ethnic minority disparities with regards to recruitment and retention into clinical trials, prevention efforts, genetic factors associated with treatment response, drug disposition and toxicity, as well as vaccine research. The group of international experts will be asked to develop recommendations for innovative research agendas and changes to current agendas that will facilitate progress in this area.

Status

The workshop was held on October 29-30, 2003 in Washington, DC.

Meeting Agenda

Session I: Prevention

Topic	Speaker/Panelists	Moderator
Plenary Overview: Epidemiology of HIV-1 in the United States	Allyn Nakashima	Veronica Miller
Presentation of Research: Racial & Ethnic Minorities & HIV	Maria Cecilia Zea
Panel Discussion One: “ Where does prevention research need to go? What are the priorities for racial and ethnic minorities?”	Kate MacQueen, William Strain, Karina Walters, Frank Wong, Maria Cecilia Zea	Jeff Levi
Panel Discussion Two: “Relationship between treatment and prevention”	Tommy Chesbro, Robert Grant, George Roberts, Anita Vaughn, Steve Wakefield	Laura Cheever
Panel Discussion Three: “Interaction between behavioral prevention research and vaccine research”	Cornelius Baker, Stephen Oxendine, Carlos del Rio, Karina Walters	Frances Priddy

Session II: Treatment

Plenary Overview: Race and Ethnicity Issues in Access to Care and Treatment	William Cunningham	Tom Kresina
Panel Discussion: “ Where are the research gaps regarding mechanisms for providing access and care to minorities?”	Omobosola Akinsete, Jennifer Kates, Sana Loue, Carlos Del Rio	John Palen
Plenary Overview: Race and Ethnicity Issues in Treatment Response and Toxicity	Scott Penzak	Lauren Wood
Panel Discussion: “Opportunities for investigating race and ethnicity dependent differences in treatment response, toxicity, etc. Relationship between clinical research and access to quality care”	David Bangsberg, Arlene D. Bardeguez, Vicky Cargill, Colleen Cunningham, Elaine Daniels, Christopher Dezii, Daniel Montoya, Kim Struble	Rich D’Aquila

Session III: Vaccine Research

Plenary Overview	Mark Feinberg	Chad Womack
Comments on the importance of minority involvement in trials and the recruiting of volunteers from minority communities	Barney Graham
Panel Discussion: Maximizing representation of racial and ethnic minorities in clinical trials	Naihua Duan, Bonnie Mathieson, Steve Wakefield, Carol Weiss, Chad Womack, Lauren Wood	Barney Graham
Final Discussion Round	Conference Co-Chairs, Vicky Cargill, Michelle McMurry	Veronica Miller

Project Manager:
Craig A Hunter

Project Specific Sponsors:
Office of AIDS Research, National Institutes of Health
Centers for Disease Control and Prevention
Bristol-Myers Squibb

Forum for Collaborative HIV Research
Department of Prevention and Community Health
School of Public Health and Health Services

2175 K St NW Ste 700
Washington, DC 20037
Phone: 202 530-2370
Fax: 202 530-3923
info@hivforum.org